Participation in Brains for Dementia Research is entirely voluntary and donors can withdraw at any time without giving a reason. Donors taking part with the agreement of their study partner can likewise be withdrawn.
After death of the donor their nominated representative or next of kin can subsequently withdraw consent on the donor’s behalf, at any time, either before or after donation has taken place, should they believe this would have been the donor’s wish. It is therefore important that key family members are fully aware of the donor’s wishes.
We are very conscious that dementia is a challenging condition for both people affected and their carers. We are mindful of the fact that brain donation takes place at a highly difficult time for family members.